In addition to the national support group Loosely Speaking, Ehlers-Danlos Syndromes New Zealand also has regional support hubs who meet from time to time. These support hubs are run by volunteers from the nationwide Ehlers-Danlos community and are a great way to meet other members within the same region.
Captial & Coast, Hutt & Wairarapa Hub
Had their first catch up of the year, and are hoping to do this monthly. If this is your region, please join their hub page and connect with other zebras in your area.
Save the date! The Rare Beer Challenge and fundraiser for Rare Disorders NZ! We’ve asked Wellington breweries to use weird and wonderful ideas along with rare ingredients and brewing techniques to produce their version of a rare beer. Let your taste buds be the judge! Come join the party, try some truly rare beers and see who’s crowned The Rare Beer champion.
The Rare Beer Challenge
26 FEB | From 4pm
Fortune Favours, Leeds Street, Wellington.
No hub in your area yet and you have some time to spare? Join up as a Hub Leader! Contact us for further information.