We are always looking for unique ways to fundraise for our community. With that in mind, we have Zebra related merchandise for purchase at our online store, with proceeds enabling EDSNZ to continue on their mission in New Zealand.


Do you shop online? Help us raise funds for free!

We’re on RewardHub, a website where 100’s of leading brands Reward us with free donations, at no extra cost to you, when you shop online and are signed up to support us.

It’s an easy place to shop with discounts on big brands in fashion, beauty, entertainment, travel, utilities, money, homeware, food, drink and more.

To learn more and sign up to our page, please visit Rewardhub.co.nz/ehlers-danlos-syndromes-new-zealand.

Leading retailers include: Countdown, Trade Tested, Beyond Bling Jewellery, Paper Plus, MightyApe, Lego and more! There’s something for everyone!

Find out more about how RedwardHub works by watching the video below.

RewardHub March 2023

Spread Awareness by Raising Funds

One of the best ways to help spread awareness is to fundraise! To find out how we can support you in your fundraising endeavors, please contact our team on contact@ehlers-danlos.org.nz.

Register your fundraising event with Ehlers-Danlos Syndromes New Zealand here. Alternatively you can set up a personal fundraiser at our Fundraising Website, which can be used for many types of online fundraiser including in lieu of gifts for a birthday or wedding, a personal goal you want to achieve while raising money, or as an In Memoriam. See below for more details.

If you’re got an idea for your own fundraiser but aren’t sure how to go about setting it up, check out our online fundraising page. Just sign up and choose from a range of different fundraisers, create your profile and share with family and friends. Adventure’s allows you to do whatever you want, cut your hair, hold a twitch fundraiser stream, bike around the country – it’s literally a choose your own adventure!

You can also hold an online raffle, or raise money for EDSNZ in lieu of gifts for your birthday, wedding or your new addition to the family.

This website is up continuously so you can hold a fundraiser whenever you like.

If you’re interested in holding a school, or other community fundraiser, check out our brochure for schools and kids after-school activities! Our brochure is downloadable and printable so you can take it in to your kids school or group (such as scouts or venturers) to help raise awareness of EDS/HSD as well as raise funds for EDSNZ.¬†Get your local schools involved by holding a mufti day for a gold coin donation!

If your local school or other community organization is interested, they can contact EDSNZ on treasurer@ehlers-danlos.org.nz for more details.

Please note that while Ehlers-Danlos Syndromes New Zealand is grateful to all who raise funds, we are unable to assist you with your fundraising event by sending staff at this stage.

Fundraising Resources

The Ehlers-Danlos Society, the international society for EDS & HSD provides free resources for fundraising purposes. Check out their free downloadable brochure to Top Tips for Raising Funds and Awareness as well free downloadable Posters and Brochures.

For more ways to support Ehlers-Danlos Syndromes New Zealand, click here.

Past Fundraising Events