We are always looking for unique ways to fundraise for our community. With that in mind, we have Zebra related merchandise for purchase, with proceeds enabling EDSNZ to continue on their mission in New Zealand.
If you wish to purchase any of these products, or would like to have them available for an event you’re holding, please email us at email@example.com along with your order name, quantity you wish to order and contact details, and we will issue you with an invoice.
Please note there will be an additional cost for postage, see below for postage rates. Would you like to add a donation of $2 or $5 on top of your order to help EDSNZ with our mission? Please indicate this in your order. All donations will be gratefully received.
$25 each. Current sizes available:
Womans Scooped Neckline Medium to 2XL
Mens/Unisex Sizes Medium, XL and 2XL
Fighter Band – 2 in stock.
You’re Not Alone – 6 in stock.
Did you know you can help raise money for Ehlers-Danlos Syndromes New Zealand when you shop online?
Rewardhub lets you earn free donations for EDSNZ, just by doing every day online shopping from our Rewardhub page, and it won’t cost you an extra cent.
Check out our RewardHub page here and sign up for free to start raising money for Ehlers-Danlos Syndromes New Zealand while you shop!
- Countdown Supermarkets
- Manuka Doctor
- Paddock To Pantry
- Fed Meal Delivery
- Paper Plus
- Mighty Ape
- Thin Lizzy
- MYM Beauty
And so many more! Find out more about how RedwardHub works by watching the video below.
October 2-3, 2021
The Ehlers-Danlos Society was delighted to host its first EDS ECHO Summit; a virtual scientific conference for health and social care practitioners. This scientific meeting will explore the most up-to-date knowledge of, and research into, the association, causation, and management of comorbidities seen in the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
A VIRTUAL SCIENTIFIC MEETING
The event took place virtually via Zoom Webinar. The format of the EDS ECHO summit is plenary sessions, each dedicated to an area of comorbidity and including combinations of expert updates on the current literature and future needs; and oral and poster presentations of chosen submitted scientific abstracts and clinical case reports.
- Physical therapies
- Pain mechanisms
- Dental complications
- Psychiatric conditions
- Urological complications
- Immune dysregulation, intolerance, and allergy disorders
- ENT disorders
- Neurodiversity (ADHD and Autism), EDS, and HSD
- Gastrointestinal disorders
- Respiratory concerns
- Autonomic dysfunction
- Orthopedic surgical outcomes
- Gynaecological (Pelvic Floor, Pregnancy) concerns
- Neurological (craniocervical) complications
The objectives of the event are to:
- Gain an understanding of the evidence-base for associations between EDS, HSD, and co-morbid conditions, by review of the most up to date clinical and basic science literature.
- Appreciate the assessment and treatment options and challenges in the management of co-morbidities, and where applicable the evidence of causation of co-morbidities in EDS and HSD and how this impacts choice/adaptations of treatment.
- Gain insight into the clinical and basic science questions that influence future research objectives in the field of EDS and HSD.
This event is for health care and clinical research professionals and invited representatives of allied organizations.
If you have further questions please email firstname.lastname@example.org
25th August 2021 – 12 Noon – HSD 101: Basics of HSD/hEDS and self-care.
1st September 2021 – 12 Noon – HSD 102: POTS and POTS self-care, basics of MCAS
8th September 2021 – 12 Noon – HSD 103: Pain management in HSD/hEDS
15th September 2021 – 12 Noon – HSD 104: Safe exercise selection and progression with HSD/hEDS
22nd September 2021 – 12 Noon – HSD 106: Gut issues in HSD/hEDS, POTS, MCAS
Spread Awareness by Raising Funds
One of the best ways to help spread awareness is to fundraise! To find out how we can support you in your fundraising endeavors, please contact our team on email@example.com.
Register your fundraising event with Ehlers-Danlos Syndromes New Zealand here. Alternatively you can set up a personal fundraiser at our Fundraising Website, which can be used for many types of online fundraiser including in lieu of gifts for a birthday or wedding, a personal goal you want to achieve while raising money, or as an In Memoriam.
Please note that while Ehlers-Danlos Syndromes New Zealand is grateful to all who raise funds, we are unable to assist you with your fundraising event by sending staff at this stage.
The Ehlers-Danlos Society, the international society for EDS & HSD provides free resources for fundraising purposes. Check out their free downloadable brochure to Top Tips for Raising Funds and Awareness as well free downloadable Posters and Brochures.
For more ways to support Ehlers-Danlos Syndromes New Zealand, click here.