Fundraising

We are always looking for unique ways to fundraise for our community. With that in mind, we have Zebra related merchandise for purchase, with proceeds enabling EDSNZ to continue on their mission in New Zealand.

If you wish to purchase any of these products, or would like to have them available for an event you’re holding, please email us at treasurer@ehlers-danlos.org.nz along with your order name, quantity you wish to order and contact details, and we will issue you with an invoice.

Please note there will be an additional cost for postage, see below for postage rates. Would you like to add a donation of $2 or $5 on top of your order to help EDSNZ with our mission? Please indicate this in your order. All donations will be gratefully received.

Products Available

$25 each. Current sizes available:

Womans Scooped Neckline Medium to 2XL

Mens/Unisex Sizes Medium, XL and 2XL

$15 each

Fighter Band – 2 in stock.

You’re Not Alone – 6 in stock.

$20 each.

Please click here to see the different designs available. Please indicate which cup you would like to order.

$10.00 for 4 straws, 1 carry bag & 1 straw cleaner

Click here for more details

$12.00 for 2x adult toothbrushes & 2x childs toothbrushes

Click here for more details

  Kid-Friendly & Latex-Free –

$12.50 per pack

Click here for more details

Postage Rates

Small parcel –
$4.80 Auckland Urban
$5.25 North Island Urban
$5.35 – South Island Urban
+ 1.67 for all rural parcels
 
All other parcel sizes will be calculate at invoice.
$2.20 nationwide for smaller envelope-sized orders.
 
Please email us on Treasurer@ehlers-danlos.org.nz with your order + quantity and your shipping adress and we will issue you an invoice for payment. Orders will be shipped upon confirmation of payment.

Did you know you can help raise money for Ehlers-Danlos Syndromes New Zealand when you shop online?

Rewardhub lets you earn free donations for EDSNZ, just by doing every day online shopping from our Rewardhub page, and it won’t cost you an extra cent. 

Check out our RewardHub page here and sign up for free to start raising money for Ehlers-Danlos Syndromes New Zealand while you shop!

Stores Include:

And so many more! Find out more about how RedwardHub works by watching the video below.

Upcoming Events

EDS ECHO Summit: A Virtual Scientific Conference on EDS, HSD and Comorbidities

October 2-3, 2021

The Ehlers-Danlos Society was delighted to host its first EDS ECHO Summit; a virtual scientific conference for health and social care practitioners. This scientific meeting will explore the most up-to-date knowledge of, and research into, the association, causation, and management of comorbidities seen in the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). 

A VIRTUAL SCIENTIFIC MEETING

The event took place virtually via Zoom Webinar. The format of the EDS ECHO summit is plenary sessions, each dedicated to an area of comorbidity and including combinations of expert updates on the current literature and future needs; and oral and poster presentations of chosen submitted scientific abstracts and clinical case reports.

Topics include:

  • Physical therapies
  • Pain mechanisms
  • Dental complications
  • Psychiatric conditions
  • Urological complications
  • Immune dysregulation, intolerance, and allergy disorders
  • ENT disorders
  • Neurodiversity (ADHD and Autism), EDS, and HSD
  • Gastrointestinal disorders
  • Respiratory concerns
  • Autonomic dysfunction
  • Orthopedic surgical outcomes
  • Gynaecological (Pelvic Floor, Pregnancy) concerns
  • Neurological (craniocervical) complications

The objectives of the event are to:

  1. Gain an understanding of the evidence-base for associations between EDS, HSD, and co-morbid conditions, by review of the most up to date clinical and basic science literature.
  2. Appreciate the assessment and treatment options and challenges in the management of co-morbidities, and where applicable the evidence of causation of co-morbidities in EDS and HSD and how this impacts choice/adaptations of treatment.
  3. Gain insight into the clinical and basic science questions that influence future research objectives in the field of EDS and HSD.

This event is for health care and clinical research professionals and invited representatives of allied organizations.

If you have further questions please email events@ehlers-danlos.com

EDS Echo Patient Sessions

25th August 2021 – 12 Noon – HSD 101: Basics of HSD/hEDS and self-care.
1st September 2021 – 12 Noon – HSD 102: POTS and POTS self-care, basics of MCAS
8th September 2021 – 12 Noon – HSD 103: Pain management in HSD/hEDS
15th September 2021 – 12 Noon – HSD 104: Safe exercise selection and progression with HSD/hEDS
22nd September 2021 – 12 Noon – HSD 106: Gut issues in HSD/hEDS, POTS, MCAS

We will be sending out the zoom link closer to the time. This will also be posted on our Facebook page and our support group if you would like to attend.
 
If you are unable to attend these sessions, we will be recording them with presentation power points given afterward which will be available to all here.
 
If you have any questions you want asked anonymously, or asked because you cannot attend but would still like answered, please flick these through to us on Contact@ehlers-danlos.org.nz

Spread Awareness by Raising Funds

One of the best ways to help spread awareness is to fundraise! To find out how we can support you in your fundraising endeavors, please contact our team on contact@ehlers-danlos.org.nz.

Register your fundraising event with Ehlers-Danlos Syndromes New Zealand here. Alternatively you can set up a personal fundraiser at our Fundraising Website, which can be used for many types of online fundraiser including in lieu of gifts for a birthday or wedding, a personal goal you want to achieve while raising money, or as an In Memoriam.

Please note that while Ehlers-Danlos Syndromes New Zealand is grateful to all who raise funds, we are unable to assist you with your fundraising event by sending staff at this stage.

Fundraising Resources

The Ehlers-Danlos Society, the international society for EDS & HSD provides free resources for fundraising purposes. Check out their free downloadable brochure to Top Tips for Raising Funds and Awareness as well free downloadable Posters and Brochures.

For more ways to support Ehlers-Danlos Syndromes New Zealand, click here.

Past Fundraising Events