What is EDS and HSD Awareness Month?

Every May, people all over the world show their support for people living with and affected by the Ehlers-Danlos syndromes (EDS), and hypermobility spectrum disorders (HSD). Our shared mission is important throughout the year, but May is a time we all come together, share experiences, and highlight what is needed to progress change. 

For years now, the challenges of the COVID-19 pandemic have made the situation even more difficult for those living with EDS and HSD with delayed or canceled appointments, treatments, genetic testing, and diagnosis, to accessing care and therapies they depend on for quality of life.

Now more than ever, we need the global EDS and HSD community, health care professionals, businesses, policy-makers, and individuals across the world to help us push forward with research and education to improve care.

Participate in Events

Awareness Merchandise & Materials

Earn Spot Prizes for Participating In Events

Thanks to our sponsors who have helped us by providing items for spot prizes. Check out some of the merchandise you could win just by signing up and participating in our events in May. We’re adding more items as spot prizes soon so keep an eye out!


Support Calls and Online Patient Sessions

Each week of May we will be hosting suppport calls or zoom sessions with Dr Leslie Russek, which you can participate in. Links will be posted below along with the dates and times of each session so you can join us.


Previous Fundraising Events