News articles from New Zealand, and around the world, about EDS and EDSers in New Zealand.
New Zealand Herald
7 August 2024
Ehlers-Danlos Syndrome: Sick teen booked for overseas surgery after fundraising effort
NZ Herald
29 June 2024
Ehlers-Danlos Syndrome: Family fundraising to get urgent overseas surgery for sick teen
Newstalk ZB
23 June 2024
She lost one daughter. Surgery saved another. Now she fears for her youngest
New Zealand Herald
6 April 2024
Dunedin woman with Ehlers Danlos syndrome wrongly diagnosed with eating disorder
New Zealand Herald
31 March 2024
Frank Ritchie talks fighting to get his daughter’s Ehlers-Danlos syndrome taken seriously - Ask Me Anything
New Zealand Herald
16 March 2024
Rotorua mum’s Ehlers-Danlos Syndrome diagnosis battle after years of symptoms
New Zealand Herald
26 February 2024
Radio host Frank Ritchie’s daughter Selah on mend after Ehlers-Danlos Syndrome surgery
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/G2WZ23AFANHQJMRFCWPB3I4DNI.jpg)
New Zealand Herald
13 February 2024
Good Samaritan comes to the aid of Hawke’s Bay teen Trinity Hutchins
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/3WVH46LIKNFDBA6ZVSPIHJPRV4.jpg)
New Zealand Herald
24 January 2024
NZ euthanasia laws: Taupō woman with degenerative disease denied dignified death by terminal illness rules
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/Y6GROFQLSJDOBMK3LECLXRHQUA.jpg)
New Zealand Herald
22 December 2023
Radio host Rev Frank Ritchie talks of daughter Selah’s battle with EDS, funding for surgery in Germany
New Zealand Herald
10 December 2023
NZ teenager accused of faking illness in Ehlers-Danlos Syndrome controversy
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/J6TO2P4M2NG5RL4FCJ6JZGNEDM.JPG)
New Zealand Herald
7 December 2023
Ehlers-Danlos Syndrome: Havelock North family fights to fund a future in the wake of tragedy
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/4FPEBOCPD2U6EEOWOWISZ3LU6Q.jpg)
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/2KQDDBXF322O77C43YEGSLZK6A.jpg)
New Zealand Herald
28 November 2023
Ehlers-Danlos syndrome sufferer Georgie Ferris dies, family remember ‘treasured daughter’
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/P7PS5ZAONVBNPITDOC5HU25XUE.JPG)
New Zealand Herald
16 November 2023
Cycling librarian takes on Lake Taupō Cycle Challenge for a good cause
Medical Daily
26 September 2023
What Is EDS? Woman Dies From 'Invisible Disease' After Being Accused Of Faking Illness
Stuff
25 September 2023
'I just want a life': The 17-year-old Dunedin teen heading overseas for life-saving operation
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/WJCGPS3WSBD7NPBUSMRD7JPVXA.JPG)
Hawkes Bay Today via NZ Herald
23 September 2023
Ehlers-Danlos Syndrome: Germany treatment allows semblance of normal birthday for Kiwi teen
MamaMia
18 September 2023
'Stephanie Aston died after doctors said she was faking her symptoms. I'm not even surprised.'
The Mirror
14 September 2023
Stephanie Aston's death didn’t shock me - disabled women are hardly ever believed
The Independent UK
14 September 2023
Steph Aston sought help for a rare genetic disorder. She died after being accused of faking her illness
/shethepeople/media/media_files/s1OpFo2JpCKh8mMJ0dF3.jpg)
Daily Express
8 September 2023
Woman, 33, tragically dies from rare illness after doctors said it was all in her head
Unilad
8 September 2023
Woman, 33, dies from rare disorder after 'doctors told her illness was all in her head'
WRKC Locall12
8 September 2023
33-year-old woman dies after doctor claimed she was faking her symptoms
Vigour Times
8 September 2023
Tragic Loss: Inspiring Woman, 33, Succumbs to Rare Illness Despite Doctor’s Mental-Health Diagnosis
MSN
8 September 2023
Doctor accuses New Zealand woman of faking illness, she dies from rare disorder
India Today
8 September 2023
Doctor accuses New Zealand woman of faking illness, she dies from rare disorder
The Mirror
7 September 2023
Woman, 33, dies of health condition after doctors accuse her of faking symptoms
Express Healthcare Management
7 September 2023
The Tragic Story of Stephanie Aston: Shedding Light on Ehlers-Danlos Syndrome
Express Healthcare Management
7 September 2023
Tragic Death of New Zealand Woman Misdiagnosed with Ehlers-Danlos Syndrome
:max_bytes(150000):strip_icc():focal(749x0:751x2):format(webp)/steph-aston-090723-2-5b063e72021847a889df56daf504058c.jpg)
24SSports
7 September 2023
New Zealand woman dies of Ehlers-Danlos Syndrome after doctors say she was faking her illness
7 News Australia
7 September 2023
Before she died with Ehlers-Danlos Syndrome, doctors told Steph Aston she was faking it
News.com.au
7 September 2023
Woman, 33, dies after doctor accused her of faking her horror symptoms of rare disorder
The Independent UK
6 September 2023
Woman accused of faking symptoms of debilitating illness dies aged 33
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/IG6CPK26UNAO7YBT5RKEJNWR7Y.jpg)
NZ Herald
5 September 2023
Stephanie Aston death: EDS sufferers call for change after doctors accused woman of faking illness
Express Healthcare Management
4 September 2023
Tribute to Stephanie Aston: A Beacon of Hope for the Ehlers-Danlos Syndromes Community
Newstalk ZB
17 June 2023
‘If we don’t go ... Jaimee will die’: Mum gives up home, job to take teen for surgery in Germany
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/G46M2Y2S4ZCJFBG7M7QEND2DOM.JPG)
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/QXZD4FK7NZZTHOZFIEJE2B6POY.jpg)
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/3K2VD6D5RIAV2LAJ47WVANHKHU.jpg)
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/NBOSBTIWBQHXIJYWP6S5LIUL3U.jpg)
Whanganui Chronicle via NZ Herald
12 April 2019
Whanganui teen Jaz Dangen-Forster's family relieved at diagnosis, treatment for Ehlers-Danlos Syndrome (EDS)
New Zealand Herald
20 March 2019
Georgie Ferris in agony for 12 days after botched surgery sewed her colon shut
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/2MSOGAQ4GDW2FVKCTITYB2SOHA.jpg)
New Zealand Herald
24 January 2019
'Soul Lounge' helps people with disabilities participate in Waikato music festival
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/IMGOX2W2RLAAJKSMOFEDOBKRKQ.jpg)
New Zealand Herald
2 January 2019
Digging deep: Kiwis donated more than $18,600,000 on Givealittle in 2018
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/CTXMW4JSWJGDFSJDFSPVA7QJUI.jpg)
New Zealand Herald
14 December 2018
Advocate calls for hub and guidelines for Ehlers-Danlos patients
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/Z4OS7FFULDHNJHSCXGNOZRLIL4.jpg)
New Zealand Herald
12 December 2018
Psychiatrist downplays role of Ehlers-Danlos - Dr Rachel Palmer bedridden and broken
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/ROVGAUTEXBSXEJN2O7XSCR7SAI.jpg)
New Zealand Herald
12 December 2018
Georgie Ferris' weight dropped to 33kg - now she wants to help other EDS sufferers avoid the factitious disorder label
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/SAEGOUYXQ747WYTRFECDQBSMJI.jpg)
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/6PH3ZNSNGU2GDZXG37YEB4FQ7E.jpg)
New Zealand Herald
11 December 2018
EDS sufferer Nichola Smith is fighting to get factitious disorder diagnosis deleted from her medical notes
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/5GPKYE6QGC26YIDHPMS4QQQ32I.jpg)
New Zealand Herald
10 December 2018
NZ woman's 'life at stake' in medical diagnosis row, accused of faking her symptoms
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/LKUOWW2FQO6EQX2XVL5GTWOXQE.jpg)
New Zealand Herald
10 December 2018
Kiwi with disease cannot get treatment, doctors say she's faking her symptoms
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/WH3DJGUZVP3DN6H5JSS3RAL6TM.jpg)
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/UB35Z3XK7UL32ZJOTIBMQAKRQI.jpg)
/cloudfront-ap-southeast-2.images.arcpublishing.com/nzme/BRVOPPWQYQRXBFRTCNIN6RZVJE.jpg)