About Us


Our main goal is to help create awareness in New Zealand of Ehlers Danlos Syndrome. Extremely important is connecting clinicians and patients together, and helping with research and understanding of the condition.

The majority of our members have the condition themselves, and are New Zealand wide, so we are hoping to spread our message with education, projects and fundraising. 

We become a registered Charity under Ehlers-Danlos Society New Zealand Incorporated (CC55826) on 12/06/2018.
Our registration with the Societies New Zealand Incorporated (2704932) on 22/05/2018.