Our main purpose is to help create awareness in New Zealand of Ehlers Danlos Syndrome. Connecting Clinicians and patients to one another, and helping with further research to help with further understanding of Ehlers Danlos Syndrome.
Since the majority all of our members suffer from Ehlers Danlos Syndrome themselves, and we’re all spread over New Zealand, we’re hoping to create awareness and connect patients with projects and fundraising through out New Zealand.
We have become a registered Charity under Ehlers-Danlos Society New Zealand Incorporated – CC55826 – effective 12/06/2018. Our registration with the Societies New Zealand become effective 22/05/2018 – 2704932.
