Session One - HSD 101: Basics of HSD/hEDS and self-care.
25th August 2021 – 12 Noon
For a full PDF of Slides click here
Full recorded session is available below. Automatically generated subtitles are available on each video.
Links from session one:
Supports and Braces
Pain Management
- Web site for chronic pain management, with sections for adults with pain, children with pain, and health professionals. Each module has a short educational video – https://www.aci.health.nsw.gov.au/chronic-pain
- https://www.curablehealth.com/
- Extensive Self-management guide for patients: Managing Chronic Pain
- Trigger point management: Valerie De Laune, Pain Relief with Trigger Point Self-Help (book)
Miscellaneous
- Is It Really Fibromyalgia? Recognizing Mast Cell Activation, Orthostatic Tachycardia, and Hypermobility
- Educator’s Guide to EDS
- Hypermobility Syndromes Association
- Ehlers-Danlos Society
- Ehlers-Danlos/Hypermobility Spectrum Disorder
- Job Accommodation Network EDS guideline
- POTS UK
- The Mast Cell Disease Society
- Potsdam Fibro/EDS Support Group