Our Mission is to improve the wellbeing of those with Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders in Aotearoa New Zealand by raising awareness, improving knowledge by health professionals and providing support to patients.
Our Vision is to have an Aotearoa New Zealand where all people with Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders receive an early diagnosis, proper treatment, care and support.
Ehlers-Danlos Society New Zealand became an Incorporated Society (#2704932) in May 2018 and became a Registered Charity (CC55826) in June 2018.
We currently have 7 committee members and we meet monthly via Google Meet. If you’re interested in joining the EDSNZ Committee please contact us.
2021 Performance Report currently available to view here.