We want to make life for everyone living with Ehlers-Danlos Syndrome easier. Our goal is to compile a full list of resources that may help you access services available nationwide, as well as tips for daily life with EDS. This is a long-term goal for EDSNZ so please check back regularly as we work towards getting information compiled and uploaded.
Having EDS can take its toll on your mental health, and it’s normal to grieve after a life changing diagnosis. While we here at Ehlers-Danlos Syndromes New Zealand are here to help, we also have a list mental health resources that are available to you.
If you’ve or someone you know has been diagnosed with Vascular EDS, we have created a package for you to get started on creating a care team, creating an emergency file and tips for living with Vascular EDS.