Fundraising

We are always looking for unique ways to fundraise for our community. With that in mind, we have Zebra related merchandise for purchase, with proceeds enabling EDSNZ to continue on their mission in New Zealand.

If you wish to purchase any of these products, or would like to have them available for an event you’re holding, please email us at treasurer@ehlers-danlos.org.nz along with your order name, quantity you wish to order and contact details, and we will issue you with an invoice.

Please note there will be an additional cost for postage. Would you like to add a donation of $2 or $5 on top of your order to help EDSNZ with our mission? Please indicate this in your order. All donations will be gratefully received.

Products Available

Cooling Towel - $10

Lanyard – $3 each

Phone Grip – $5 each

Cooling Towel – $10 each

T-shirts $25 each, limited stock available, please contact us and we will be in touch.

Zox Bands – $15 each.

In your order please specify if you want the Ladies Scooped Neckline or the Unisex T-Shirt.

Current sizes available:

  • Womans Medium to 2XL
  • Mens Sizes Medium, XL and 2XL

Did you know you can help raise money for Ehlers-Danlos Syndromes New Zealand when you shop online?

Rewardhub lets you earn free donations for the society, just by doing every day online shopping from their Rewardhub page, and it won’t cost you an extra cent.

Check out our RewardHub page here!

Upcoming Fundraisers and Events

Ehlers-Danlos Awareness Month May 1st-31st

We want this to be our biggest awareness month yet!

Walk For Awareness Distance Challenge

May 1st to May 31st.

Hosted by Ehlers-Danlos Syndromes New Zealand.

Walk, Run, Swim, Ride or Roll to fundraise money for EDS Awareness Month! This is your chance to let your friends and family know how EDS/HSD affects you personally and raise both awareness of EDS/HSD in NZ as well as funds to help Ehlers-Danlos Syndromes New Zealand continue it’s mission of getting a better understanding, and ultimately treatment, of EDS/HSD.

Sign up for free now, share your profile with friends and family to get sponsored, and then on the 1st of May start tracking your steps or daily distance! Update daily to keep your sponsors up-to-date with your progress!

EDS Community Recipe Book

Email Jennifer with your favourite recipes at Jennifer@ehlers-danlos.org.nz before the 15th of May! Once all recipes have been collected, and the book has been created by the team at EDSNZ we will add this to the fundraising section above so keep checking back!

Livestream Fundraiser for EDS Awareness

May 14th at 8:30pm

Join CaptivatedUnicorn on Twitch for a 24 hour marathon to raise both awareness and funds for EDSNZ. CaptivatedUnicorn will be discussing EDS in general, as well as what its like to live with EDS.

Stay tuned for upcoming fundraisers held by, and on behalf, of the Ehlers-Danlos NZ Community.

EDS ECHO Event Series: Pain Management – A European Pain Perspective 

April 24 – 25 2021

The Ehlers-Danlos Society’s first EDS ECHO Summit Series event will take place April 24-25, 2021. A virtual event on Pain Management: A European Perspective. 

April 24, 2021, will be Healthcare Professionals Day.
The health professional’s day will take place from 08:45 AM – 6: 00 PM Eastern Time.

April 25, 2021, will be Community Day.
This day is for members of the EDS and HSD community, their families, and caregivers. The community day will take place from 08:45 AM – 6:00 PM Eastern Time.

For more information and to register: 
https://www.ehlers-danlos.com/eds-echo-event-series-pain-management/

Virtual Summer Conference 2021: Managing Daily Life with EDS & HSD
June 26-27, 2021 

Join us as leading experts present the latest research, management, and scientific information, on the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions, for our Virtual Summer Conference 2021!

This event is suitable for the EDS community, their families and caregivers, and healthcare professionals. The agenda will be announced soon. 

The conference will take place June 26-27 2021, from 08:45 AM – 4:45 PM Eastern Daylight Time.
(Please use the converter world time buddy to find the correct times in your location)

The conference will take place online via Zoom Webinar. If you have questions please email events@ehlers-danlos.com.

EDS ECHO Event Series: Vascular Ehlers-Danlos-Syndrome (vEDS)

July 30-31, 2021

We are delighted to be hosting a dedicated event for vascular Ehlers-Danlos syndrome (vEDS). Join us as leading experts present the latest research, management, and scientific information on vEDS and comorbidities. 

We will be offering live translations during this event in English (original language), French, German, Spanish, and Japanese.

July 30, 2021, will be Healthcare Professionals Day. CME/CEU/CE Credits will be available (pending approval), and available to claim for sessions that are viewed LIVE.
The health professional’s day will take place from 08:45 AM – 4:45 PM Eastern Time.

July 31, 2021, will be Community Day.
This day is for members of the EDS and HSD community, their families, and caregivers. The community day will take place from 08:45 AM – 4:45 PM Eastern Time.
(Please use the converter world time buddy to find the correct times in your location.)

The agenda will be announced soon.

The conference will take place online via Zoom Webinar. If you have questions or if you would be interested in sharing your experiences as part of our Community Voices segment, please email events@ehlers-danlos.com.

Spread Awareness by Raising Funds

One of the best ways to help spread awareness is to fundraise! To find out how we can support you in your fundraising endeavors, please contact our team on contact@ehlers-danlos.org.nz.

Register your fundraising event with Ehlers-Danlos Syndromes New Zealand here.

Please note that while Ehlers-Danlos Syndromes New Zealand is grateful to all who raise funds, we are unable to assist you with your fundraising event by sending staff at this stage.

Fundraising Resources

The Ehlers-Danlos Society, the international society for EDS & HSD provides free resources for fundraising purposes. Check out their free downloadable brochure to Top Tips for Raising Funds and Awareness as well free downloadable Posters and Brochures.

For more ways to support Ehlers-Danlos Syndromes New Zealand, click here.